TJ is a very quick witted 16 year-old teenager that comes from a very close knit family. After many years of brain scans, muscle biopsies and metabolic analyses, he was diagnosed with “D-bifunctional Protein Deficiency”, a rare genetic disease with fewer than 100 globally diagnosed with the same condition. This disease is progressive and damages [...]
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Meredith is a sweet and beautiful 8 year old little girl. She was diagnosed with life-limiting cerebral palsy. Meredith loves animals, swimming, crafts and reading. She enjoys anything with lights and sparkles. She loves people and enjoys watching them dancing for her. Since Meredith is not in a position to travel, the family’s wish was [...]
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Lily is a beautiful little girl with big brown eyes and curly brown hair. She has been diagnosed with Neimann-Pick Disease (Type A), a very rare, life-limiting medical condition. Her mobility has been impacted by her disease and she will never have the ability to crawl, walk or sit on her own. Lily is unable [...]
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Jordyn is a sweet and pleasant 16 year old girl who enjoys spending time with her friends. She likes watching movies and reading and her favorite place is to be at her grandparent’s home. Because of her medical issues, Jordyn has had a very hard time adjusting to a new lifestyle. Her most cherished wish [...]
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Tysen is a very mature and caring 12 year-old boy. He was diagnosed with Phiffer Syndrome at birth and had his first surgery when he was just nine days old. Tysen loves to watch Adam Sandler movies and whenever friends and family come to visit from distant places, he tries to persuade them to watch [...]
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